National Organization for Rare Disorders
Address
7 Kenosia Avenue
Danbury, CT 06810
(800) 999-6673
AKA:
NORD
Description:
Supports individuals suffering from or affected by diagnosed rare diseases and their families. Provides information on rare diseases and a patient financial assistance program for specified diseases and medications.
Hours:
Monday to Thursday, 7:30 am - 6:00 pm
Friday, 7:30 am - 5:00 pm
Languages:
English, Spanish
Handicap Accessible?
No
Is Shelter?
No
Date of Official Change:
February 26, 2024
Geographies Served
Serves All Areas
Address Listings
Physical (Primary)
7 Kenosia Avenue
Danbury, CT 06810
Contacts
General Email
Information & Resource Services
(800) 469-0283
Phone Numbers
Toll Free
(800) 999-6673
Caregiver Respite Program
(203) 616-4328
Fax
(203) 263-9938
Main
(203) 744-0100
Spanish
(844) 259-7178
Legal Status:
Non-Profit
Services
Click here to show all service details. Or click on a service name to see its details specifically.
Description
Provides reimbursement for transportation expenses for clinical trials for medical treatments or to consult with disease specialists in select situations.
Hours
Monday to Thursday, 7:30 am - 6:00 pm; Friday, 7:30 am - 5:00 pm
Required Documents
May include: Proof of citizenship or residency; medical diagnosis; proof of income; proof of eligibility
Eligibility
Must have an applicable diagnosis or physician/doctor referral; Be a US Citizen or provide documentation of permanent US residency status; or resident of the United States for at least six months; Must meet income/financial guidelines; Must meet medical diagnosis and program-specific guidelines.
Fees
No fee
Intake Procedure
Call (800) 469-0283 or email at informationservices@rarediseases.org for assessment to determine if disease diagnosis and treatment fit the limited and specific criteria.
Languages
English, Spanish
Geography Served
If a location is grayed out it means that only certain areas within it are covered. The areas with complete covereage are listed in black.
Serves all areas
Telephone Numbers
Description
Patient financial assistance program for specified diseases and medications, including financial assistance for insurance payments, diagnostic tests, and more.
Hours
Monday to Thursday, 7:30 am - 6:00 pm; Friday, 7:30 am - 5:00 pm
Required Documents
Proof of citizenship or evidence of residency; Proof of income, as needed;
Eligibility
Must have an applicable diagnosis or physician/doctor referral; Be a US Citizen or provide documentation of permanent US residency status; or resident of the United States for at least six months; Must meet income/financial guidelines.
Fees
No Fees
Intake Procedure
(1) Locate a program on website by disease state (2) Follow related contact information to be connected to assistance (3) Call 800-469-0283 if a needed patient assistance program is not listed on the website (4) For assistance in Spanish call 844-259-7178
Languages
English, Spanish, language line for additional languages
Geography Served
If a location is grayed out it means that only certain areas within it are covered. The areas with complete covereage are listed in black.
Serves all areas
Telephone Numbers
Description
Respite Program provides financial assistance to enable caregivers a break.
Hours
Monday to Thursday, 7:30 am - 6:00 pm; Friday, 7:30 am - 5:00 pm
Required Documents
Proof of income; Proof of citizenship or evidence of residency
Eligibility
US citizen or permanent resident of the United States for at least six months with evidence of residency; Meet financial eligibility guidelines; Provide care for an individual with a confirmed rare disease diagnosis.
Fees
No fees
Intake Procedure
Contact a Patient Services Representative at 203-616-4328 or email CaregiverRespite@rarediseases.org.
Languages
English, Spanish, language line available for other languages
Geography Served
If a location is grayed out it means that only certain areas within it are covered. The areas with complete covereage are listed in black.
Serves all areas
Telephone Numbers
Description
Connect persons with rare diseases with other patient assistance programs
Hours
Monday-Thursday 7:30 am â 6:00 pm Friday 7:30 am â 5:00 pm
Eligibility
Persons with rare diseases and their caregivers
Fees
No fees
Intake Procedure
Call (800) 469-0283 or email at informationservices@rarediseases.org for assistance.
Geography Served
If a location is grayed out it means that only certain areas within it are covered. The areas with complete covereage are listed in black.
Serves all areas
Telephone Numbers
Send profile information to an email address.
Provide your email address to receive information about National Organization for Rare Disorders.
Sent!
Close this fieldSend a condensed resource profile to your phone via text message (SMS).
Select your cell carrier and provide your phone number to receive information about National Organization for Rare Disorders.
Sent!
Close this field